There's a family to keep in your prayers today, the parents of little twin girls, Sydney and Carynne. They received a diagnosis of Werdnig-Hoffman disease, a form of Spinal Muscular Atrophy, shortly before their 5 month birthday. They would have been 6 months old today. Instead, their parents are attending their funeral. I do not know the family, but know a few ladies that know the mother, Brook.
Today, in honor of two gorgeous girls that were otherwise happy and healthy up until a month ago, folks across the US (including Miss Amelia) are wearing pink.
Spinal Muscular Atrophy is the #1 genetic killer of children. If this cause sounds like something you could support, please sign this petition: http://www.petitiontocuresma.com/. One thing I found significant was that advances towards curing this genetic abnormality could have an impact in curing several other major diseases.
1 comment:
We will definitly keep them in our prayers. Mom
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